BEGIN:VCALENDAR
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PRODID:-//ERN BOND - ECPv6.17.5//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:ERN BOND
X-ORIGINAL-URL:https://ernbond.eu
X-WR-CALDESC:Events for ERN BOND
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
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BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
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BEGIN:STANDARD
TZOFFSETFROM:+0200
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TZNAME:CET
DTSTART:20271031T010000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260122T171656Z
CREATED:20260122T171656Z
LAST-MODIFIED:20260122T171656Z
UID:8973-1772236800-1772323199@ernbond.eu
SUMMARY:Rare Disease Day 2026
DESCRIPTION:
URL:https://ernbond.eu/event/rare-disease-day-2026/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2025/12/RDD_2026_FB_banners_template-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260225T100000
DTEND;TZID=Europe/Rome:20260225T110000
DTSTAMP:20260122T152854Z
CREATED:20260122T152827Z
LAST-MODIFIED:20260122T152854Z
UID:8918-1772013600-1772017200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260224T180000
DTEND;TZID=Europe/Rome:20260224T190000
DTSTAMP:20260217T132821Z
CREATED:20260217T125754Z
LAST-MODIFIED:20260217T132821Z
UID:9137-1771956000-1771959600@ernbond.eu
SUMMARY:ERN BOND ePAG & Coordination meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-epag-coordination-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260219T100000
DTEND;TZID=Europe/Rome:20260219T110000
DTSTAMP:20260128T212919Z
CREATED:20260122T121154Z
LAST-MODIFIED:20260128T212919Z
UID:8830-1771495200-1771498800@ernbond.eu
SUMMARY:CPMS 2.0 Admin Application and Reporting Thursday 19th February 10.00
DESCRIPTION:Join from the webinar link \nhttps://ecconf.webex.com/ecconf/j.php?MTID=m7d31c05ac121c86c4dae117a36bff17a \n1.Dealing with new requests for access\n2.Managing Users\n3.Creating and managing Groups\n4.Reporting
URL:https://ernbond.eu/event/cpms-2-0-admin-application-and-reporting-thursday-19th-february-10-00/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260217T170000
DTEND;TZID=Europe/Rome:20260217T180000
DTSTAMP:20260122T121052Z
CREATED:20260122T121004Z
LAST-MODIFIED:20260122T121052Z
UID:8828-1771347600-1771351200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260217T160000
DTEND;TZID=Europe/Rome:20260217T170000
DTSTAMP:20260122T152308Z
CREATED:20260122T152239Z
LAST-MODIFIED:20260122T152308Z
UID:8907-1771344000-1771347600@ernbond.eu
SUMMARY:WP4 Preganancy survey meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp4-preganancy-survey-meeting-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260217T100000
DTEND;TZID=Europe/Rome:20260217T110000
DTSTAMP:20260128T213354Z
CREATED:20260122T120929Z
LAST-MODIFIED:20260128T213354Z
UID:8826-1771322400-1771326000@ernbond.eu
SUMMARY:CPMS 2.0 Care Application and Mobile Tuesday 17th February 2026
DESCRIPTION:Join from the webinar link\nhttps://ecconf.webex.com/ecconf/j.php?MTID=m609b0b5ab948e2e42b996e25125f5851 \nAgenda \n\nSign up Flow for Clinicians\, Assistants and Guests\nMain overview\nPatient records and Enrolling new patients\nAdding files and participants to Patient Records\nOpening and conducting a Discussion\nScheduling a meeting\nUser settings\nChat feature\nMobile version of CPMS 2
URL:https://ernbond.eu/event/cpms-2-0-care-application-and-mobile-tuesday-17th-february-2026/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260213T140000
DTEND;TZID=Europe/Rome:20260213T150000
DTSTAMP:20260122T152805Z
CREATED:20260122T152736Z
LAST-MODIFIED:20260122T152805Z
UID:8916-1770991200-1770994800@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260212T160000
DTEND;TZID=Europe/Rome:20260212T170000
DTSTAMP:20260211T163442Z
CREATED:20260211T163442Z
LAST-MODIFIED:20260211T163442Z
UID:9086-1770912000-1770915600@ernbond.eu
SUMMARY:Rare bone diseases webinar series: Achondroplasia adult management
DESCRIPTION:
URL:https://ernbond.eu/event/rare-bone-diseases-webinar-series-achondroplasia-adult-management/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260211T170000
DTEND;TZID=Europe/Rome:20260211T180000
DTSTAMP:20260122T124433Z
CREATED:20260122T111443Z
LAST-MODIFIED:20260122T124433Z
UID:8823-1770829200-1770832800@ernbond.eu
SUMMARY:ERN BOND WP6 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp6-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260205T140000
DTEND;TZID=Europe/Rome:20260205T150000
DTSTAMP:20260122T143601Z
CREATED:20260122T111337Z
LAST-MODIFIED:20260122T143601Z
UID:8820-1770300000-1770303600@ernbond.eu
SUMMARY:Webinar: 2026 ERN BOND annual monitoring exercise for HCPs
DESCRIPTION:
URL:https://ernbond.eu/event/webinar-2026-ern-bond-annual-monitoring-exercise-for-hcps/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260128T140000
DTEND;TZID=Europe/Rome:20260128T170000
DTSTAMP:20260122T111158Z
CREATED:20260122T111158Z
LAST-MODIFIED:20260122T111158Z
UID:8818-1769608800-1769619600@ernbond.eu
SUMMARY:2nd webinar on Clinical Practice Guidelines
DESCRIPTION:
URL:https://ernbond.eu/event/2nd-webinar-on-clinical-practice-guidelines/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260128T100000
DTEND;TZID=Europe/Rome:20260128T110000
DTSTAMP:20260122T152656Z
CREATED:20260122T152614Z
LAST-MODIFIED:20260122T152656Z
UID:8913-1769594400-1769598000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260122T100000
DTEND;TZID=Europe/Rome:20260122T110000
DTSTAMP:20260122T110733Z
CREATED:20260122T110733Z
LAST-MODIFIED:20260122T110733Z
UID:8816-1769076000-1769079600@ernbond.eu
SUMMARY:CPMS 2.0 Admin Application and Reporting
DESCRIPTION:1.Dealing with new requests for access\n2.Managing Users\n3.Creating and managing Groups\n4.Reporting
URL:https://ernbond.eu/event/cpms-2-0-admin-application-and-reporting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260122T080000
DTEND;TZID=Europe/Rome:20260122T170000
DTSTAMP:20260122T143720Z
CREATED:20260122T161846Z
LAST-MODIFIED:20260122T143720Z
UID:8863-1769068800-1769101200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260121T173000
DTEND;TZID=Europe/Rome:20260121T183000
DTSTAMP:20260127T142554Z
CREATED:20260122T110306Z
LAST-MODIFIED:20260127T142554Z
UID:8813-1769016600-1769020200@ernbond.eu
SUMMARY:ERN BOND WP8 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp8-meeting/
CATEGORIES:WP8 meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260120T170000
DTEND;TZID=Europe/Rome:20260120T180000
DTSTAMP:20260122T104538Z
CREATED:20260122T104538Z
LAST-MODIFIED:20260122T104538Z
UID:8807-1768928400-1768932000@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260120T160000
DTEND;TZID=Europe/Rome:20260120T170000
DTSTAMP:20260122T110203Z
CREATED:20260122T110203Z
LAST-MODIFIED:20260122T110203Z
UID:8811-1768924800-1768928400@ernbond.eu
SUMMARY:WP4 Preganancy survey meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp4-preganancy-survey-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260120T160000
DTEND;TZID=Europe/Rome:20260120T170000
DTSTAMP:20260122T105859Z
CREATED:20260122T105859Z
LAST-MODIFIED:20260122T105859Z
UID:8809-1768924800-1768928400@ernbond.eu
SUMMARY:ERN BOND WP2 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp2-meeting/
END:VEVENT
END:VCALENDAR