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X-WR-CALDESC:Events for ERN BOND
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BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260910T160000
DTEND;TZID=Europe/Rome:20260910T170000
DTSTAMP:20260806T101110Z
CREATED:20260806T100357Z
LAST-MODIFIED:20260806T101110Z
UID:9699-1789056000-1789059600@ernbond.eu
SUMMARY:Hypophosphatemia: Clinical consequences and diagnostic approach
DESCRIPTION:
URL:https://ernbond.eu/event/hypophosphatemia-clinical-consequences-and-diagnostic-approach/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/08/WebinarSeries_Minisola.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260911T140000
DTEND;TZID=Europe/Rome:20260911T150000
DTSTAMP:20260122T161403Z
CREATED:20260122T161403Z
LAST-MODIFIED:20260122T161403Z
UID:8949-1789135200-1789138800@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260915T100000
DTEND;TZID=Europe/Rome:20260915T110000
DTSTAMP:20260910T130940Z
CREATED:20260910T130921Z
LAST-MODIFIED:20260910T130940Z
UID:9749-1789466400-1789470000@ernbond.eu
SUMMARY:CPMS 2.0 Training sessions for clinicians (CPMS 2.0 Care Application and Mobile)
DESCRIPTION:
URL:https://ernbond.eu/event/training-sessions-for-clinicians-cpms-2-0-care-application-and-mobile/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260915T170000
DTEND;TZID=Europe/Rome:20260915T180000
DTSTAMP:20260803T093700Z
CREATED:20260803T092104Z
LAST-MODIFIED:20260803T093700Z
UID:9679-1789491600-1789495200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:Event \n\n\n\nEvent\nCalendar invite\n\n\n\n\nERN BOND monthly CPMS session\nClick to add to calendar
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-12/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260916T173000
DTEND;TZID=Europe/Rome:20260916T183000
DTSTAMP:20260122T150555Z
CREATED:20260122T150555Z
LAST-MODIFIED:20260122T150555Z
UID:8893-1789579800-1789583400@ernbond.eu
SUMMARY:ERN BOND WP8 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp8-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260917T073000
DTEND;TZID=Europe/Rome:20260917T183000
DTSTAMP:20260806T102807Z
CREATED:20260806T102651Z
LAST-MODIFIED:20260806T102807Z
UID:9707-1789630200-1789669800@ernbond.eu
SUMMARY:EPOS BAT Advanced course: Rare Bone Diseases\, Bologna\, 17-18 September
DESCRIPTION:
URL:https://ernbond.eu/event/epos-bat-advanced-course-rare-bone-diseases-bologna-17-18-september/
LOCATION:Istituto Ortopedico Rizzoli Bologna\, Via di Barbiano\, 1/10\, 40136 Bologna BO\, Bologna\, Italy
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/07/EPOS-BAT-ADV-Rare-Bone-Diseases-SEP2026-web-banner1-800-800-p-T-97.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260918T080000
DTEND;TZID=Europe/Rome:20260918T160000
DTSTAMP:20260806T104251Z
CREATED:20260806T102915Z
LAST-MODIFIED:20260806T104251Z
UID:9710-1789718400-1789747200@ernbond.eu
SUMMARY:EPOS BAT Advanced course: Rare Bone Diseases\, Bologna\, 17-18 September
DESCRIPTION:
URL:https://ernbond.eu/event/epos-bat-advanced-course-rare-bone-diseases-bologna-17-18-september-2/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/07/EPOS-BAT-ADV-Rare-Bone-Diseases-SEP2026-web-banner1-800-800-p-T-97.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260918T121000
DTEND;TZID=Europe/Rome:20260918T131000
DTSTAMP:20260806T104236Z
CREATED:20260806T103137Z
LAST-MODIFIED:20260806T104236Z
UID:9712-1789733400-1789737000@ernbond.eu
SUMMARY:EPOS BAT Advanced course joint EPOS–ERN BOND session: Perspectives from Patients and Parents Living with Rare Skeletal Disorders
DESCRIPTION:Session title\nPerspectives from Patients and Parents Living with Rare Skeletal Disorders\n\n\nDate and time\n18 September\, 2026 at 12:10 – 13:10 CEST\n\n\nDescription\nA joint EPOS–ERN BOND session placing the patient perspective at the centre of discussions on the challenges and priorities in rare skeletal disorders\, with contributions from leading European representatives of patient organisations and caregivers.\n\n\nChair\nLuca Sangiorgi\n\n\nSpeakers\n\n\nLiana La Forgia (UK) Multiple Osteochondromas (caregiver) A.C.A.R. APS (International Relations Manager) & ERN BOND ePAG \nSusana Noval Iruretagoyena (Spain) Achondroplasia (caregiver) Fundación ALPE Acondroplasia (President) & ERN BOND ePAG \nAlessandra Tolaccia (Italy) Osteogenesis Imperfecta (patient) Osteogenesis Imperfecta Federation Europe (Vice-President)
URL:https://ernbond.eu/event/epos-bat-advanced-course-joint-epos-ern-bond-perspectives-from-patients-and-parents-living-with-rare-skeletal-disorders/
LOCATION:Istituto Ortopedico Rizzoli Bologna\, Via di Barbiano\, 1/10\, 40136 Bologna BO\, Bologna\, Italy
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260923T100000
DTEND;TZID=Europe/Rome:20260923T110000
DTSTAMP:20260122T161451Z
CREATED:20260122T161451Z
LAST-MODIFIED:20260122T161451Z
UID:8951-1790157600-1790161200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-17/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260925T180000
DTEND;TZID=Europe/Rome:20260925T190000
DTSTAMP:20260806T122832Z
CREATED:20260806T121021Z
LAST-MODIFIED:20260806T122832Z
UID:9726-1790359200-1790362800@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-7/
END:VEVENT
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