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DTSTART;TZID=Europe/Rome:20260722T100000
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DTSTAMP:20260122T160956Z
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UID:8943-1784714400-1784718000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-13/
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DTSTART;TZID=Europe/Rome:20260722T170000
DTEND;TZID=Europe/Rome:20260722T180000
DTSTAMP:20260706T124235Z
CREATED:20260706T124209Z
LAST-MODIFIED:20260706T124235Z
UID:9641-1784739600-1784743200@ernbond.eu
SUMMARY:ERN BOND webinar series...Talking about
DESCRIPTION:Title: Clinical perspectives on Achondroplasia: Management from birth to adolescence\nDate: 22 July 2026 17:\n\nSpeaker: \n\nMaria Francesca Bedeschi\, MD:  Head of the Neonatal-Onset Clinical Genetics Center at Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico\, Milan\, Italy\n\nMichaela Veronika Gonfiantini\, MD: Consultant in paediatrics of the Rare Diseases and Medical Genetics Unit\, Bambino Gesù Children’s Hospital IRCCS\, Rome\, Italy\nRoberta Onesimo\, MD\, PhD: Head of Pediatric Unit at Fondazione Policlinico A Gemelli – IRCCS Rome ITALY – Catholic University of the Sacred Heart Rome ITALY
URL:https://ernbond.eu/event/ern-bond-webinar-series-talking-about/
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