Webinar Series Rare Bone Diseases: The pathogenesis and consequences of having too much bone
Wednesday May 31st, 2023 From 16:00 to 17:00 CEST Chairs: [...]
Framework for Patient Engagement in Clinical Trials
Wednesday May 24th 2023 from 15:00 to 16:00 CEST Speakers: Virginie [...]
Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial. Study case from the ERN-EuroBloodNet
Wednesday May 10th 2023 from 12:30 to 13:30 CEST Speakers: [...]
Biological material in scientific research
Speakers: Luca Sangiorgi, Luisa Minghetti, Maria Grazia Daidone, Chiara Baldo, Giuseppe [...]
Musculoskeletal avatar. A possible solution for creating digital twins in children with skeletal dysplasia
Speakers: Giovanni Trisolino View Replay
COVID19 and indications for patients with OI
Speakers: Luca Sangiorgi, Andrea Vianello Now available with English subtitles View [...]
Recording of the Tools for Remote Follow-up of Rare Bone Dieseases’ Patients
Speakers: Luca Sangiorgi, Gianluca Moro, Giacomo Frisoni, Paolo Fraschini [...]
Designing and conducting clinical trials in rare diseases – what industries expect for partnering with clinical sites
Friday April 14th 2023 from 12:30 to 13:30 CEST Speaker: [...]
Burosumab for X-linked hypophosphatemia in children and adolescents: Opinion based on early experience in seven European countries
Burosumab for X-linked hypophosphatemia in children and adolescents: Opinion based [...]
ERN and national health system:how to integrate them?
ERN and national health system:how to integrate them? (IT) Educational [...]
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