Innovation Bootcamp in Rare Diseases 2022 (IBRD2022) Congress
The in-person event will take place in Brussels, Belgium on [...]
Integration of the ERN into the local healthcare system in Bologna
Integration of the ERN into the local healthcare system in [...]
EJP RD – Rare Diseases Clinical Trials Toolbox
The Rare Diseases Clinical Trials Toolbox has been developed by [...]
2nd ICCBH-ERN BOND International Achondroplasia Workshop Spinal Pathology in Children with Achondroplasia, 2nd July, Dublin, Ireland.
The workshop co-organized by International Conference on Children Bone Health [...]
Adult chronic nonbacterial osteomyelitis (CNO) of the sternocostoclavicular region (SCCH) Survey
The Center for Bone Quality of the Leiden University Medical Center, the [...]
ERN-BOND, the last five years and the future.
ERN BOND webinars are aimed at prompting education and training [...]
ECRD – European Conference on Rare Diseases 2022
ERN BOND is an Associate Partner of ECRD 2022: MISSION [...]
Spinal Stenosis in Achondroplasia Survey
In the past weeks, representatives of patient organizations, the European [...]
Achondroplasia Spinal Survey
The Spinal Working Group of ICCBH Achondroplasia designed an investigation [...]
ERICA 2nd General Assembly 20th-22nd June 2022 in Bologna, Italy
All the ERICA beneficiaries, ERN representatives, Expert Group members, Advisors [...]