MELORHEOSTOSIS MODULE
melorheostosis module leaflet
DRIP Project
Progetto DRIP
EURORDIS All ePAG Meeting
The EURORDIS All ePAG Meeting will take place between November [...]
Effect of burosumab treatment on phosphate metabolism and bone health in patients with X-linked hypophosphatemic rickets (XLH). Preliminary data within an Italian sample.
Effect of burosumab treatment on phosphate metabolism and bone health [...]
Innovation Bootcamp in Rare Diseases 2022 (IBRD2022) Congress
The in-person event will take place in Brussels, Belgium on [...]
Integration of the ERN into the local healthcare system in Bologna
Integration of the ERN into the local healthcare system in [...]
EJP RD – Rare Diseases Clinical Trials Toolbox
The Rare Diseases Clinical Trials Toolbox has been developed by [...]
2nd ICCBH-ERN BOND International Achondroplasia Workshop Spinal Pathology in Children with Achondroplasia, 2nd July, Dublin, Ireland.
The workshop co-organized by International Conference on Children Bone Health [...]
Adult chronic nonbacterial osteomyelitis (CNO) of the sternocostoclavicular region (SCCH) Survey
The Center for Bone Quality of the Leiden University Medical Center, the [...]
ERN-BOND, the last five years and the future.
ERN BOND webinars are aimed at prompting education and training [...]