EJP RD Variant Prioritization and Enrichment for Rare Diseases Workshop
🗓 From 20th to 22nd September 2023 ⏰ 09:00 - [...]
EURORDIS – European Rare Diseases Organisation Black Pearl Awards
Don't miss your chance to nominate your star of the [...]
HOT TOPICS – Pediatric Bone Diseases
HOT TOPICS: Pediatric Bone Diseases. New diagnostic and therapeutic frontiers. [...]
Take the new #RareBarometer survey!
Survey now live! Take the new #RareBarometer survey and share [...]
Liana, Tenna, Claudia and Rebecca attended and contributed under the OIFE conference “Balancing life with OI”.
🔹The conference addressed issues around pain in OI, and also [...]
Workshop “Patient priorities in ERN BOND beyond Quality of Life”
Workshop "Patient priorities in ERN BOND beyond Quality of Life" [...]
ERN BOND plenary hybrid meeting
4th - 5th May 2023 Bologna at Centro di Ricerca [...]
The 2nd ANDO Congress: “Discovering Knowledge and Experiences”
⏰ 29th and 30th of April 📍 Setúbal, Lisbon A [...]
XIII Conference A.C.A.R. Aps: Working towards a multidisciplinary and shared approach of rare disease patients transition from paediatric to adult care management
A.C.A.R. Aps (Italian Patient Association for Multiple Osteochondromas, Ollier disease [...]
EJP RD – ERN Workshop: Genetics and Precision Medicine in Rare Diseases
Precision medicine is an emerging approach to clinical research and [...]