🗓 From 20th to 22nd September 2023 ⏰ 09:00 - [...]
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So far giroidea has created 55 blog entries.
Don't miss your chance to nominate your star of the [...]
HOT TOPICS: Pediatric Bone Diseases. New diagnostic and therapeutic frontiers. [...]
Survey now live! Take the new #RareBarometer survey and share [...]
Liana, Tenna, Claudia and Rebecca attended and contributed under the OIFE conference “Balancing life with OI”.
🔹The conference addressed issues around pain in OI, and also [...]
Workshop "Patient priorities in ERN BOND beyond Quality of Life" [...]
4th - 5th May 2023 Bologna at Centro di Ricerca [...]
⏰ 29th and 30th of April 📍 Setúbal, Lisbon A [...]
XIII Conference A.C.A.R. Aps: Working towards a multidisciplinary and shared approach of rare disease patients transition from paediatric to adult care management
A.C.A.R. Aps (Italian Patient Association for Multiple Osteochondromas, Ollier disease [...]
Precision medicine is an emerging approach to clinical research and [...]