ERN BOND has been launched one questionnaire addressed to healthcare professionals & patient groups and one dedicated to patients. Thank you so much to everyone who participated!
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So far Elisa Ferrarini has created 11 blog entries.
BOND ERN at the presentation of the report MONITORARE of UNIAMO in Rome, the 3rd of July.
1st ICCBH-BOND ERN International Achondroplasia Workshop: Foramen magnum stenosis in children with achondroplasia
The International Workshop Foramen magnum stenosis in children with achondroplasia, organized by BOND and ICCBH, is a pre-meeting workshop taking place at ICCBH on Saturday 22 June 2019, 07:30-11:50, at Salzburg Congress Centre.
Join the conference Quality of Life 4 OI, taking place from 22-25 November 2019 in Amsterdam!
We are sharing with you today that the 3rd ANDO National Meeting will take place on the 29th June in Coimbra, Portugal!
Save the date for the First European Achondroplasia Annual Meeting at The Assembly House, Norwich, on Thursday 23rd May!
This weekend (11th-12th May) the Norsk Forening for Osteogenesis Imperfekta (the Norwegian OI Organization) is celebrating 40 years!
ACAR Onlus (Associazione Conto alla Rovescia) is an Italian association which has the goal to spread the knowledge and research about Ollier/ Maffucci Syndrome.
SAVE THE DATE! May 28th and 29th, 2019, Florence, Italy. Fibrous Dysplasia and McCune-Albright Syndrome: 4 th Meeting of International FD/MAS Consortium
The 9th International Conference on Children’s Bone Health will take place in Salzburg, Austria, from the 22nd to the 25th of June 2019. Below, some useful information about it.