LOUDRARE is a recently founded non-profit organization that has our ePAG Nadine Großmann among the founders. The goal of LOUDRARE is to build a digital community for people with rare diseases (any indication) and especially motivated young people to get involved and be loud for rare diseases 👥
In January it launched, in Germany, the #wiedu campaign (wie du = like you) with the goal to raise awareness in the general public for rare diseases and above all, show them: we are just like you.
The highlight of campaign will be that posters will be shown at train stations in 8 German big cities in the last week of February with a grand finale on the 28th Rare Disease Day. 🟢🟣🔵
More information on the website.