The Center for Bone Quality of the Leiden University Medical Center, the Netherlands has developed this survey on chronic nonbacterial osteomyelitis (CNO) of the sternocostoclavicular region (SCCH), isolated or as part of SAPHO syndrome, in adults.
The aim is to collect international perspectives on the diagnosis and treatments of this rare bone disease spectrum.
All CNO/SAPHO experts are invited to complete this survey (21 questions, 5 minutes) by July 1st 2022.
Complete the survey here: https://ec.europa.eu/eusurvey/runner/adult-chronic-nonbacterial-osteomyelitis-survey-2022)