The ECRD is the largest multi-stakeholder gathering in Europe for the rare disease community.

The biennial Conference is an opportunity to network and exchange knowledge with patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives. Over 1500 stakeholders covering research, development of new treatments, healthcare, social care, public health policies and support at European, national, regional and international levels.

The overarching theme for the conference this year is: how to transform the Rare2030 exhaustive review of the strategy on rare diseases into a proposal of concrete actions.

The ECRD 2022, MISSION (IM)POSSIBLE: Putting rare disease policy into action,  will take place fully online from 27 June to 1 July 2022.

Posters: poster abstracts submissions for the ECRD 2022 are now open until 31st March 2022.

Programme at a glance

Registration will open on 7 March 2022: