Clinical Patient Management System
ERN Collaborative Platform
Contact
Newsletter
WHO
Mission
Vision
Members
Strategic Plan
Governance
Patient Advocacy – ePAGs
COVID-19 EMERGENCY
European initiatives
Italian initiatives
COVID-19 indications
RARE BONE DISEASES
Osteogenesis Imperfecta
Achondroplasia
Hypophosphatasia
Multiple Osteochodromas
Fibrous Dysplasia/McCune-Albright Syndrome
Pseudohypoparathyroidism, Albright’s hereditary osteodystrophy & related disorders
WHAT
CPMS: discussion of complex clinical cases
WORKING GROUPS
WG Leaders
WG1 Diagnostic Challenge
WG2 Research
WG3 Good Practice & Guidelines
WG4 Clinical Trials
WG5 Database: Natural History of Diseases
WG6 Interactions with Other ERNs
WG7 Multidisciplinary Care -eHealth Tools
WG8 Education and Training
WG9 Visibility Towards Patients and HCPs
NEWS
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Working Groups
