News

Postgraduate Course in Paediatric Bone and Mineral Metabolism

5 - 6th March 2020, Birmingham. Birmingham Children’s Hospital, a member of the ERN BOND, in collaboration with other ERN…

2019 call for membership to join ERNs

The call for healthcare providers to join the 24 existing European Reference Networks just closed. A total of 841 applications…

ERN BOND Natural History Database Questionnaire

ERN BOND has been launched one questionnaire addressed to healthcare professionals & patient groups and one dedicated to patients.

Thank you so much to everyone who participated!

Presentation of the report MonitoRare of UNIAMO

BOND ERN at the presentation of the report MONITORARE of UNIAMO in Rome, the 3rd of July.

The International Workshop Foramen magnum stenosis in children with achondroplasia

The International Workshop Foramen magnum stenosis in children with achondroplasia, organized by BOND and ICCBH, is a pre-meeting workshop taking place at ICCBH on Saturday 22 June 2019, 07:30-11:50, at Salzburg Congress Centre.

Quality of Life 4 OI, the conference on quality of life with Osteogenesis Imperfecta

Join the conference Quality of Life 4 OI, taking place from 22-25 November 2019 in Amsterdam!

The 3rd ANDO National Meeting in Coimbra, Portugal

We are sharing with you today that the 3rd ANDO National Meeting will take place on the 29th June in Coimbra, Portugal!

The First European Achondroplasia Annual Meeting in Norwich

Save the date for the First European Achondroplasia Annual Meeting at The Assembly House, Norwich, on Thursday 23rd May!

The Norwegian OI organization is celebrating 40 years!

This weekend (11th-12th May) the Norsk Forening for Osteogenesis Imperfekta (the Norwegian OI Organization) is celebrating 40 years!

ACAR Onlus 11th meeting in Tirrenia, Pisa

ACAR Onlus (Associazione Conto alla Rovescia) is an Italian association which has the goal to spread the knowledge and research about Ollier/ Maffucci Syndrome.