The Conference is a great opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community

ERN BOND – The European Network for Rare Bone Diseases creates a 24-hour Help Line.

In the frame of the EJP-RD project, there are two calls for funding opened on 3 February dedicated only to persons affiliated to either ERN Full Members or Affiliated Partners.

The KBVR / SRBR Osteoporosis and Fracture Prevention Group is pleased to announce you that the Bone Curriculum Symposium and the PreSymposium Course on Rare Bone Diseases will take place on 12-13 March 2020 in Ghent (Belgium).

ERN BOND has been launched one questionnaire addressed to healthcare professionals & patient groups and one dedicated to patients.

Thank you so much to everyone who participated!

BOND ERN at the presentation of the report MONITORARE of UNIAMO in Rome, the 3rd of July.

The International Workshop Foramen magnum stenosis in children with achondroplasia, organized by BOND and ICCBH, is a pre-meeting workshop taking place at ICCBH on Saturday 22 June 2019, 07:30-11:50, at Salzburg Congress Centre.