News

Save the date for the next webinar organised by ERN BOND

Save the date for the next webinar organised by ERN BOND:
Monday June 28th at 17:00 – 18:00 CEST
“EuRR-Bone: what and how?”

New webinar organised by ERN BOND

ERN BOND organises a series of webinars: the first one will be on Tuesday June 22nd at 11:00 – 12:00…

Save the date for the next webinars organised by ERN BOND

Save the date for the next webinars organised by ERN BOND.
Updates and participation links will be published on the ERN BOND website.

Advances in diagnostic and therapeutic methods for lymph flow abnormalities

Intranodal MR lymphangiography is an imaging technique that allows for the central lymphatic vessels to be visualized. Lymph flow problems exist in many rare diseases, particularly in central conducting lymphatic anomaly and generalized lymphatic anomaly and its associated syndromes, such as Noonan.

ERICA – European Rare Disease Research Coordination and Support Action

On Thursday 27th May 2021 (from 10.00 – 16.45 h) & Friday 28th May 2021 (from 10.00 – 15.45 h) the kick-off meeting & 1st General Assembly of the European Rare Disease Research Coordination and Support Action ERICA will be held.

Public consultation “Medicines for children & rare diseases – updated rules” – Have your say!

The initiative on “Medicines for children & rare diseases – updated rules” has been updated on the European Commission’s 'Have your say'…

ECTS 2021: annual meeting of the European Calcified Tissue Society

ECTS 2021, the 48th annual meeting of the European Calcified Tissue Society, will be held as a virtual meeting.
ECTS serves as a forum for researchers and clinicians working in the musculoskeletal field to discover and discuss the latest advances and controversies in research and in the daily care of patients.

EJP RD call for Research Mobility Fellowships will open on 15th of March

The Research Mobility Fellowships aims to support PhD students, Postdocs and medical doctors in training
to undertake scientific visits fostering specialist research training, on rare diseases, outside their countries
of residence.

Exchange Programme launch for healthcare professionals in ERNS

Up to 44 one-week visit packages will be available to healthcare professionals from ERN BOND member or Affiliated Partner centres over the coming two years.

Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic

ERN BOND coordination team and Italian rare bone diseases experts created the “COVID-19 Helpline for Rare Bone Diseases”, in collaboration with Italian Patient Associations. The helpline aimed at providing high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals.