COVID-19 emergency: actions implemented in the Italian context
Creation of a dedicated helpline for patients and clinicians
ERN BOND coordination team and Italian BOND HCPs have set up an informal helpline for RBD patients and clinicians in the Intensive Care Units and / or COVID-19 devoted wards that are treating / will treat patients affected by rare bone diseases, in particular OI patients.
A devoted mobile number +39 331 1728796 (available 24 hours a day) that professionals can call in case they need information and advice on RBD patients with COVID-19. Other Italian BOND HCPs have been involved in this helpline, in order to create an extensive network of experts in the field of rare bone diseases able to provide assistance, according to different needs.
This initiative has been developed also in collaboration with the Italian OI association (ASITOI) and the Italian federation of Rare Diseases Patients Associations (UNIAMO FIMR). At the moment, the helpline is available only in Italy, but the possibility to replicate it in other countries is currently under discussion.
Meet the BOND experts involved:
Dr. Luca Sangiorgi
Dr. Maria Luisa Brandi
Dr. Maria Francesca Bedeschi
Dr. Davide Gatti
Dr. Giampiero Baroncelli
Dr. Paolo Fraschini
Dr. Stefania Sella
Dr. Laura Ruzzini
Dr. Michaela Veronika Gonfiantini
Dr. Sandro Giannini
Dr. Giovanna Mantovani
Dr. Andrea Vianello