ERN BOND Natural History Database Questionnaire

ERN BOND Natural History Database Questionnaire

We are glad to share with you that as a part of its activities, ERN BOND is launching one questionnaire addressed to healthcare professionals & patient groups and one dedicated to patients with the aim to take stock of the registries or databases being used in...
The 3rd ANDO National Meeting in Coimbra, Portugal

The 3rd ANDO National Meeting in Coimbra, Portugal

We are sharing with you today that the 3rd ANDO National Meeting will take place on the 29th June in Coimbra, Portugal! The President of the Board of ANDO Portugal, Inês Alves, is also a BOND ePAG. More information about the meeting and registration here: 3º Encontro...
The First European Achondroplasia Annual Meeting in Norwich

The First European Achondroplasia Annual Meeting in Norwich

Save the date for the First European Achondroplasia Annual Meeting at The Assembly House, Norwich, on Thursday 23rd May! Organizer of the meeting is Dr. Emma Webb, Paediatric Endocrinologist, Norfolk and Norwich University Hospital. More details about the program in...