Latest News

EJP-RD: ERN specific Calls for Fellowships and Workshop

In the frame of the EJP-RD project, there are two calls for funding opened on 3 February dedicated only to persons affiliated to either ERN Full Members or Affiliated Partners.

2020 Symposium of the KBVR/SRBR Osteoporosis and Fracture Prevention Group

The KBVR / SRBR Osteoporosis and Fracture Prevention Group is pleased to announce you that the Bone Curriculum Symposium and the PreSymposium Course on Rare Bone Diseases will take place on 12-13 March 2020 in Ghent (Belgium).

Welcome EuRR-Bone!

The European Commission accepted our proposal on the call for projects aiming to support the development and creation of registries for rare diseases in Europe. We can now start to create EuRR-Bone – European Registry for Rare Bone and Mineral Conditions – based on...

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EJP-RD: ERN specific Calls for Fellowships and Workshop

In the frame of the EJP-RD project, there are two calls for funding opened on 3 February dedicated only to persons affiliated to either ERN Full Members or Affiliated Partners.

2020 Symposium of the KBVR/SRBR Osteoporosis and Fracture Prevention Group

The KBVR / SRBR Osteoporosis and Fracture Prevention Group is pleased to announce you that the Bone Curriculum Symposium and the PreSymposium Course on Rare Bone Diseases will take place on 12-13 March 2020 in Ghent (Belgium).

Welcome EuRR-Bone!

The European Commission accepted our proposal on the call for projects aiming to support the development and creation of registries for rare diseases…

Postgraduate Course in Paediatric Bone and Mineral Metabolism

5 - 6th March 2020, Birmingham. Birmingham Children’s Hospital, a member of the ERN BOND, in collaboration with other ERN…

2019 call for membership to join ERNs

The call for healthcare providers to join the 24 existing European Reference Networks just closed. A total of 841 applications…

ERN BOND Natural History Database Questionnaire

ERN BOND has been launched one questionnaire addressed to healthcare professionals & patient groups and one dedicated to patients.

Thank you so much to everyone who participated!

Presentation of the report MonitoRare of UNIAMO

BOND ERN at the presentation of the report MONITORARE of UNIAMO in Rome, the 3rd of July.

The International Workshop Foramen magnum stenosis in children with achondroplasia

The International Workshop Foramen magnum stenosis in children with achondroplasia, organized by BOND and ICCBH, is a pre-meeting workshop taking place at ICCBH on Saturday 22 June 2019, 07:30-11:50, at Salzburg Congress Centre.

Quality of Life 4 OI, the conference on quality of life with Osteogenesis Imperfecta

Join the conference Quality of Life 4 OI, taking place from 22-25 November 2019 in Amsterdam!

The 3rd ANDO National Meeting in Coimbra, Portugal

We are sharing with you today that the 3rd ANDO National Meeting will take place on the 29th June in Coimbra, Portugal!

Mission

The main ambition of the ERN BOND is to implement measures that facilitate multidisciplinary, holistic, continuous, patient-centred and participative care provision to people living with rare bone diseases (RBDs), supporting them in the full realization of their fundamental human rights.

Vision

BOND will bring rapid interchange of information, skills and practice to shorten time to diagnosis, and treatment. BOND will develop, with PAGs, evidence/consensus-based guidelines to improve agreed outcomes in the 3 exemplar conditions, OI, XLH and ACH.

Strategic Plan

The ERN BOND brings together all rare diseases, essentially congenital, chronic and of genetic origin, that affect cartilage, bones and dentin. This considerable group of diseases present a significant variation in clinical outcomes and limited research program are currently available…


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ERNBOND Network

ERN-BOND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern

European Reference Networks for rare and complex diseases