ERN BOND

European Reference Network
on rare bone diseases

Welcome to our website

Network

ERN BOND is one of the 24 existing European Reference Networks (ERNs). In particular, ERN BOND aims to improve access to high-quality healthcare for patients suffering from rare bone diseases.

Mission

ERN BOND aims to implement measures that facilitate multidisciplinary, holistic and patient-centred care provision for people living with rare bone disorders, ensuring realisation of their fundamental human rights.

Vision

The ambition of ERN BOND is to bring rapid interchange of information, skills and practice to shorten time to diagnosis and treatment, supporting patients affected by rare bone diseases and their families.

ERNs for rare and complex diseases

European Reference Networks are unique and innovative cross-border cooperation platforms between specialists for the diagnosis and treatment of rare or low prevalence complex diseases. 24 thematic ERNs, gathering over 900 highly specialised healthcare providers from 26 countries, are working together on a wide range of issues, from bone disorders to haematological diseases, from paediatric cancer to immunodeficiency.

The ERN on rare bone diseases

ERN BOND aims to promote good quality and safe care to patients with rare bone disorders. European Reference Networks allow doctors to share their knowledge, data and resources. Here’s the story of Elisa, who suffers from OI.:

 What I am expecting from the ERNs is more research in order to improve the quality of life of people affected by rare disorders. – Elisa

Latest News

Summer School: Rare Disease Registries and Data FAIRification

This International Summer School is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP-RD). The Course is made up of 5 days of training organized by Istituto Superiore di Sanità (ISS) in close collaboration with,...

ECRD2020 will take place online on 14-15 May

The Conference is a great opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community

COVID-19 HELP LINE

ERN BOND – The European Network for Rare Bone Diseases creates a 24-hour Help Line.

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